Condition

SPINA BIFIDA

Spina bifida is a birth disorder that involves the incomplete development of the spine. In spina bifida, the neural tube doesn’t close completely and some of the bones of the spine do not close in the back. This can result in an opening anywhere along the spine and may cause damage to the spinal cord and nerves.

An infant born with spinal bifida may have nerve damage below the affected area of the spinal cord. Some will have learning disabilities or intellectual disabilities. There is no cure but most people with spina bifida lead long lives. People with spina bifida have different abilities and medical issues.

MANAGEMENT

Patients with spina bifida require extensive, active, interdisciplinary treatment by a trained and coordinated team.

Physical Therapy programs are designed to parallel the normal achievement of gross motor milestones.

Occupational therapy should be initiated early to compensate for motor skill deficits and should progress along the normal developmental sequence.

Recreational therapy is helpful for promoting independence by enhancing play and recreational opportunities.

Speech therapy may be indicated for patients with speech and/or swallowing difficulties.

Bladder Management

Treatment strategies are designed to prevent deterioration of renal function and to establish infection-free social continence. These goals can be accomplished by several different methods of bladder drainage, including intermittent catheterization, vesicostomy, and placement of indwelling catheters.

Bowel Management

Individualized programs are necessary for proper bowel management, given the different manifestations of defecation dysfunction seen in patients with myelomeningocele.

Bracing and Orthotics

The goal of bracing is to allow patients to function at the maximum level permitted by their neurologic lesion and intelligence. Orthotics should aid in minimizing the energy needed for the patient to maintain mobility levels.

Bladder Management

Treatment strategies are designed to prevent deterioration of renal function and to establish infection-free social continence. These goals can be accomplished by several different methods of bladder drainage, including intermittent catheterization, vesicostomy, and placement of indwelling catheters.

Bowel Management

Individualized programs are necessary for proper bowel management, given the different manifestations of defecation dysfunction seen in patients with myelomeningocele.

Bracing and Orthotics

The goal of bracing is to allow patients to function at the maximum level permitted by their neurologic lesion and intelligence. Orthotics should aid in minimizing the energy needed for the patient to maintain mobility levels.